Friday, November 16, 2007

Update - IEP

Ok Maddy - this one is for you - thanks for sticking with me! :0)

After listening to Frog's teacher's concerns and mixed messages -8:30am "he's doing really well, I'm so pleased", 3:00pm "I'm really concerned, he's not progressing as I had hoped. I think it is sensory and I'm concerned his program is too scattered. I think we need an IEP meeting to discuss his behaviors, make sure we are all on the same page and not duplicating what you are doing at home." (...?!!!!??) I spent a day observing Frog at school. I've been in his class on a regular basis this year because I was walking him to school every morning. I noticed both kids (Frog and his classmate) did a lot of screaming, crying, and trying to get away, but I always got reports of "good day." I gave the benefit of the doubt that having an extra adult in the room made things more chaotic. That changed after I watched what was going on. Frog's teacher was especially concerned about his "behaviors" meaning he frequently bit his wrist and pinched the teacher or pulled her hair. I am familiar with this behavior. It has been going on for the last two years he has been in her class. At home the behavior has steadily decreased and I assumed that was also true at school. I knew the teacher responded by holding his hands firmly away from his body so he could not bite or pinch and turning her gaze away from him until he calmed down. The morning of her phone call, while I was in the room I watched one of these episodes. They were sitting at the snack table. Frog's wrist went to his mouth and he pinched the Teacher. She told him "NO!" and restrained his hands. He calmed, she let go, and he went after her again - 4 times in a row with the same response from the teacher. I stepped in and suggested that she direct him to his Vantage Voice Output device, help him select the emotions menu and encourage him to "tell" her how he was feeling rather than "show" her with a pinch. When I demonstrated, he chose "excited". The teacher was clearly not impressed - although the picture for "excited" looked a lot like Frog in that moment.

The following day, I checked his Vantage when he came home - not one single word had been accessed. I had encouraged the teacher to use the structured nature of the program to encourage him to use the Vantage. I had even modified activity lines and made pages to suit her lesson plans for him. But she left the device on the snack table where he could access it if he wanted to, but he was never encouraged or directed or shown that it was appropriate or acceptable to use in the classroom. We and several other families had gone through the same thing with PECS training in this classroom. One family got the district to bring Pyramid PECS trainers to town to train the staff and parents - I wasn't there, but heard that most of the staff were more concerned about where they were going to go out to lunch than learning the training techniques. PECS books were regularly left zipped up in backpacks or put away on high shelves until snack time when they were used as choice boards. I paid my own way to get the training in another state when it was offered, then went into the classroom (for 4 weeks) to get the training started. It never worked for Frog, but we got several other kids off the ground. It was apparent, however, that this particular teacher did not want to bring anything new into her program and assumed that communication was the SLP's job. I could see we were still on the same road with the Vantage.

The teacher began taking functional behavior data on Frog on a Thursday. I asked her to e-mail me the results. I was stunned - not only by the number of times he was biting and pinching, but by the fact that the only categories she could see for "perceived function" were avoidance and escape. I went into the classroom the next day and took my own data resulting in a 7 page write-up of observations.

I spent the weekend celebrating Diva's birthday, then got down to IEP business Sunday evening after the kids had gone down for the night. I finished at 3am and shot a copy of my observations and conclusions off to Frog's Psychologist and private SLP. Both confirmed that I was not crazy to be highly concerned and agreed that my plans for home school would serve him better. I e-mailed my seven page document to the IEP team 3 hours prior to the meeting. I copied the Principal and the Special Ed Director - who both hightailed it to the meeting along with the school psychologist invited by the teacher. My conclusions prepared them for what was coming:

III. PARENTS CONCLUSIONS:

While I did see many examples of the behaviors that were brought to my attention, they did not seem as dramatic or intrusive as the data would suggest. What I did notice was a lot of communication from Frog that while I would hope was not going un-noticed, was certainly not honored or even acknowledged. I also saw dominating behavior on the part of the adults. While I am certain it was done with Frog’s best interest at heart, it certainly would shake the trust and confidence of a small child whose world view is often confused and chaotic. I do not believe it is helpful, healthy or wise to take all of Frog’s control away. That in itself would cause enough anxiety to interfere with learning. (On a side note - I applaud the introduction of sensory calming and sensory input activities into the work of the general classroom. I would caution, however, these are tools not magic bullets. The wrong tool used at the wrong time or used excessively can make things worse not better. I got the feeling that Frog was to be squished on a regular basis whether he needed/wanted it or not. On one occasion, I saw a Para trying so hard to comply with Teacher's direction to make sure Frog got a good squish, she directed him to the mat and when he didn’t go, she brought him to the mat and made him lay down, and when he tried to crawl away, she pulled him back and squished him.) I saw examples of auditory and visual distractions interrupting Frog's motor planning leaving him floundering for what to do next preceding some of the incidence of these behaviors. And, some of the behaviors were perfectly typical fight or flight responses to unexpected or startling events. In any event, while I think they do interfere with his learning to a degree, to the extent they are communicative I don’t want to extinguish the behavior without substituting another way for him to say ‘NO! Stop that! I don’t want to do that!” He is vulnerable enough as it is. Extinguishing behaviors that are defiant, and seeking complete compliance and submission is too dangerous for him and will make it difficult for him to ever feel his has the right or ability to self advocate. Other 5 year olds (and 4, 3, 2, even 1 year olds) say NO all the time. It is ok and developmentally appropriate for him to be non compliant at times. Furthermore, extinguishing the behaviors without truly identifying their purpose and helping Frog find appropriate substitute behaviors may not give us the results we desire. He didn’t start biting his arm and pinching us until he was taught (at school) to cover his mouth with his hand when he started to scream. In my opinion, if the program he is in requires a level of compliance that does not allow him to say no – I need to put him a different program.

I cut the teacher off as she began to read her observations and concerns pointing out that these were not new behaviors and they were decreasing in an environment where he was listened to and validated. We had a long discussion about the differences between ABA and DIR which was educational for some of the staff members. Then I suggested that it was time to take a break from school and focus on communication. I got no argument from the team, and the Teacher, who started out defensive, seemed a little shocked and a little relieved. We all made nice and allowed everyone to save face. We planned a goodbye ritual for Frog complete with a photo memory book and a cupcake celebration. We told him that we were proud of how much he had grown and learned in Teacher's class and now he was ready to move on to adventure school with Mommy. We kept the IEP for now with a placement of "home school". That means we can still access the OT that we adore and the new SLP who we were so excited to work with at the begining of the year.

We have realized at home for a long time now, that
Frog learns faster and more naturally when he backs into an activity rather than trying to learn through direct instruction. I'm in the process of modifying the home school curriculum with the advice and guidance of the teacher who developed the program, to meet his specific learning style. She suggested that he may show strong resistance initially to anything he perceives as "instruction" and suggested we unschool for a little while. Today when we left our private SLP's office, the local para-transit bus was parked at the front door. Frog froze, panicked, sat down on the ground and looked at me with scared pleading eyes, vocalized distress, tensed his body and started rapid, shallow breathing. I talked him through it - "No, that is not your bus. We are going to get into our van and go home. The bus is going away and you are not going to ride the bus" He held it together, but could not move until the bus left. Riding the bus was always one of the highlights of the day. I see this as Frog's way of saying I like what we are doing and I don't want to go back to school. I feel the same way.

We did get school pictures back this week - and they are soooo good, I just have to share:



10 comments:

Maddy said...

Wow I am honoured but by the sounds of things it's hardly surprising you haven't had any time to spare.

I can only applaud your thoroughness and dogged determination to see it through.

I particularly enjoyed your analysis of what 'is going on' in the class room and how it can be re-interpreted.

Sounds like the staff have met their match which is great because it can only mean good things for Frog and the whole family.

Best wishes [for future reference I think you'll find my new / duplicate blog an easier load - I 'll pop it here and then you can delete it]
http://whittereronautism.com

Eileen (aka Mamaroo) said...

Wow, this all makes me both sad and happy. I feel bad for the fact that Frog had to be in the school environment that was so wrong for him. But I am so happy to hear that he will now be home with you where I am sure he will learn way more and he will be happy.

And the pictures ARE great! I love how he is smiling and looking so nicely. We just got ours back and I am not as pleased, but they do both look handsome of course.

I am wishing you all the best with this big change. I know it will all work out for the best for you all.

Christine said...

I just wanted to say that I am so, so impressed by how you handled this whole situation. You are clearly able to provide Frog with the kind of attention and input that his teachers are incapable of! We recently made the same decision for our son, Oliver, who is five. I just knew that being at home was the right thing. We are taking the year off from "academics" to concentrate on communication -- and it has really paid off so far. Anyway, I just wanted to say congratulations to you for doing what you believe is right for Frog even though I know from experience that it can be scary sometimes, too.

Casdok said...

Lovely pictures! Am impressed as its difficult to get good ones!

kyra said...

okay, you officially ROCK THE HOUSE! i am so impressed by the way you handled this situation, your advocacy of Frog is inspiring. and i'm excited that' you'll be embarking on the Enki journey! i think Frog is going to fly.

and the pictures are ADORABLE!!

Frogs' mom said...

Yikes, my computer caught a virus and all but crashed. I'm on a new computer now - don't want to risk passing the nasty bug on!

Maddy, thanks for your persistent interest and support. I truly value your perspective as a mom who has been there, done that with non-verbal children. I love hearing what your boys have to say now - always a reminder of brilliant and creative minds at work with or without words.

Eileen, I share your mixed feelings. And I too am happy he is home. Today he even joined my circle time activity for a second round of the elephant walk!

Christine, thank you for your kind words. I'm feeling very liberated, being able to address Frog's unique learning style and needs in a truly individual way with the support of the professionals working with us. I'm looking forward to following Oliver's story!

Casdok, thank you. I'm thrilled with the picture also, although as I look back over his pictures, he really is quite a ham and almost always has a smile for the camera - we just have to have a camera fast enough to catch him!

Kyra, thank you, thank you, thank you! I've known for the last two years that the school program he was in was not right, but I couldn't imagine homeschooling in a traditional manner and living in a rural community, other options were very limited. Finding ENKI though your blog and Fluffy's story has made a world of difference! I really appreciate your support and encouragement!

Ian Parker said...

Hi Frog's Mom,

I too am very impressed by how you handled the situation, and with your ability to advocate for Frog.

I love the Parents Conclusions, especially the viewpoint that it is perfectly valid for Frog to express non-compliance:

"Other 5 year olds (and 4, 3, 2, even 1 year olds) say NO all the time. It is ok and developmentally appropriate for him to be non compliant at times. Furthermore, extinguishing the behaviors without truly identifying their purpose and helping Frog find appropriate substitute behaviors may not give us the results we desire... In my opinion, if the program he is in requires a level of compliance that does not allow him to say no – I need to put him a different program."

I just love that, and couldn't agree more.

Great pictures too! I love Frog's smile. The Bear's pictures turned out okay, but rather than her normal smile, she has a look of 'what are you doing to me?'

Anonymous said...

Your decision to home school Frog was probably for the best.
Special education teachers have a thankless job. They get kicked, bitten and punched by the students and each parent has demands that would take four full-time professionals working exclusively with the child to implement to the parents' satisfaction. On top of this, there is record-keeping, lesson planning and keeping up with new techniques and teaching strategies.
No wonder teacher burnout is so common. Too many parents view teachers as the enemy because they have a difference of opinion about the child's behavior and abilities and the best way to instruct him/her. The parent sees the child as a perfect little angel who clobbers his classmates and kicks the teacher because his wants aren't being "honored." The teacher hates the physical acting-out and lack of cooperation from the parents. In the end, there are hard feelings on both sides.

rainbowmummy said...
This comment has been removed by the author.
rainbowmummy said...

Impresed and inspired, but not by comment left by anon...