Sunday, January 25, 2009

Overactive Immune Systems, Chronic Inflamation and a GF/CF Diet

We tried the GF/CF diet for Frog when he was two.

We waited with baited breath for the babbling to turn into words, for more eye contact, for more focus, for him to sit still. Week after week went by and we saw none of that. Month after month and little changed. When we gave up the experiment, six months in, and gave him a wheat flour filled cookie and a glass of milk - nothing. We concluded that G and C were not issues for him and went on our merry way to the next promising intervention.

Now he is six. Time and work have made significant changes in his ability to look at people, feel comfortable in his own skin, be aware of his body, and tolerate the presence of others. He is much more tuned into speech and demonstrates that he hears and understands what we are talking about. But there are still troubling, difficult issues around expressive communication, motor planing, and executive functioning.

I have been dealing with my own troubling issues involving pain, arthritis, headaches, chronic sinusitis and sinus infections, fatigue, and weight. Medical and therapeutic interventions have taken us this far, but I feel we could both feel better. I went back into my research mode and the words that pop up again and again are Inflammation and Inflammation.

I'm already taking medication for inflammation. I did a 30 day trial of prednisone last year and felt wonderful. But the long term side effects do not make continued use a desirable remedy. My current medication - hydrochloroquine (an anti malaria drug) has been working for the most part, but I still have flare ups and it doesn't address the other pains.

Current trends in anti-inflammatory treatments lean towards dietary changes. The diet that fits the bill - GF/CF with the additional elimination of nightshade vegetables, chocolate, caffeine, and alcohol, and the addition of oily fish, green leafy vegetables, fruits and nuts. So we (at least Frog and I) are going to try this once again. I'll be relying heavily on all you GF/CF moms out there for guidance and I'm picking up a new cookbook or two.

This time I'll be looking for subtler changes in both of us. Wish me luck :0)


rainbowmummy said...

*Egg slips Frog a peice of cheese*

No seriously I hope this helps you guys. I don't have arthritis, but I do have back pain, knee pain, foot pain, not to mention the exaustion (and I am just now trying to tackle the weight :0( ). It's hard isn't it, looking after the FASTEST kids in the world when you are struggling to keep up with the snails?!

I looooove frogs spin top, beautiful.

Krystal said...

i hope you find what works - it is so hard chasing after these little sneaky slippery kids when we are all aching everywhere.


Julie said...

I am wishing you both the very best!